If your daughter has developed health problems after HPV vaccination, please get in touch with us. We’re campaigning hard to ensure that these health problems are properly acknowledged and investigated, that families are treated with compassion and respect within the health service and that there is educational support in place for the girls who are struggling to attend school on a full timetable. We are also calling for a full disclosure of all the potential risks associated with the HPV vaccination to be given to parents when seeking consent, in conjunction with a more accurate assessment of the stated benefits.
If your daughter has developed new health problems, or has experienced worsening of existing health conditions, after HPV vaccination, here are some suggestions of action you might wish to take
Keep a diary of your daughter’s symptoms and note the date and time of day, the severity of the symptoms and if they flare following a meal or activity etc. You may find that a pattern emerges to highlight certain triggers, but in any case it will be useful when speaking with doctors and healthcare professionals.
Begin gathering together information that will give you a timeline of when your daughter became ill, for example, her vaccination record, her school attendance records from the start of secondary school and copies of medical records. Not only will this give a good timeline, it will also help with information needed for submitting a Yellow Card report.
Doctors appointments can be very stressful. Try to write down the main points before the appointment, and consider booking a double appointment and taking along photographs as evidence of rashes etc.
It’s important that your MP is aware of any difficulties you are experiencing accessing medical care or support for education. Many MPs are not aware that teenage girls are experiencing health problems after HPV vaccination and of the published scientific papers highlighting potential safety signals. We urge families to write to their MP outlining their story, so that as many politicians are aware as possible. We can provide letter templates and information sheets for you to send to your MP. Click here to contact us for templates and information. Click here to find your MP.
If your daughter is unable to maintain a full school timetable or to undertake certain lessons, such as PE, it’s useful to have a GP or consultant letter outlining why this isn’t possible. Ask for this letter at appointments and keep the original, with a copy to school. Put everything in writing to your daughter’s head of year and keep them updated with diagnoses and treatments. Keep all copies of correspondence and ask for exam concessions early.
The Yellow Card system is how the regulatory agency in the UK monitors drug and vaccine suspected adverse reactions. Both healthcare professionals and patients are able to submit Yellow Cards and it is vital that a Yellow Card is filed for your daughter if you suspect she has experienced side effects to the HPV vaccination, and that it is regularly updated with new symptoms, tests results and diagnoses. Click here to file a Yellow Card report online or click here to contact us for help.
Caring for a child with complex medical needs and juggling school and appointments can be exhausting. Additional stress is common from trying to do this whilst working, or having the financial struggles of having to give up work. It’s important that you, as parents, have support in place to help you deal with it all and have access to advice. We have a Facebook group for UK parents of girls experiencing health problems after HPV vaccination, which you can apply to join here, and we can signpost you to other support groups and agencies who may be able to help you.
Get in touch with us by telephone, email or social media. The more families we are able to speak with, the more knowledge we’ll bring to the campaign and the better we will be able to represent families whose daughters have experienced health problems following HPV vaccination. We may also be able to offer guidance or to signpost families to support networks or practical help. Click here to get in touch.
These Frequently Asked Questions are what typically goes through parents’ minds when they suspect their child my be suffering adverse reactions to the HPV vaccination. We have compiled the answers from our own experience, from speaking to other families of children who have experienced health problems following HPV vaccination, and from researching the medical literature.
If you have any comments about the questions or answers on this page, or would like to ask a question not asked here, please contact us using the Contact Us link below.